Wednesday 11 January 2012

A 13 Year old's Perspective on His PCS

Jake entered a radio station contest stating why he needed to win a vacation. I found it very interesting to read what he wrote totally in his own words. (I did find it funny that he used the word "misdiagnosed", it showed me that he does listen when I share his story with others!). Here you go.... "Hi my name is jake and I am 13 years old and I am writing to you on behalf of my family. We wanna get outta here because 2011 was a huge struggle financially and emotionally. I myself have just recovered from post concussion syndrome, for 2 years many different doctors have misdiagnosed me with different things, meaning wasted money on medication that was not needed. I felt like i was going crazy with all the headaches.Now that I am starting to feel normal again I think I deserve a vacation. And spend some well needed family time!!! If you guys pick our family to go on a vacation to Cuba... I would be the happiest 13 year old on earth!!! "

Wednesday 4 January 2012

Two Amazing Resources - A free online book on TBI and a complete checklist of PCS Symptoms

"Nearly all of the survivors of a traumatic head injury and their families with whom I have worked have had one complaint: There is nothing written that explains head injury in clear, easy to understand language. Most say the available material is too medical or too difficult to read. The goal of this online book is to better prepare the head injured person and family for the long road ahead."

This is the introduction to Dr. Glen Johnson, Clinical Neuropsychologist's online book, Traumatic Brain Injury Survival Guide Traumatic Brain Injury Survival Guide I found this to be the most informative resource that I have come across.  

Combined with the checklist of symptoms from the Brain Injury Resource Centre I was able to validate all of Jake's issues over the last two and a half years.  

These are great tools to use if you think you or your child are suffering from Post Concussion Syndrome / Traumatic Brain Injury.  A concussion IS a brain injury!